Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Blogathon 2003 posts


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Blog created & updated by Jeanette Navia

Blogs/Journals from the Marfan Community

Long Tall Folks' Journal

Maybe... (A love story by Thomas Schrantz)

Linka's Aorta Runs Amok

Barging Down D Nile

Thick n Thin

Jeanette's Skittering About the Web
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Blogathon 2003 posts

February 2003
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September 2003
October 2003
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May 2004
June 2004
July 2004

Saturday, July 17, 2004

Julie Kurnitz
Posted at 1:26 AM


Julie Kurnitz passed away Thursday evening surrounded by good friends and the love of many people around the world. Julie was a Broadway actress and also played talk show host Irene in Woody Allen's movie, Radio Days. She wrote and starred in the hilarious but sobering one-woman musical play "Clinical Trials." She had allowed me to post one of the songs from it, I Stand in the Ruins, in last year's Blogathon. Julie was 61.


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