Joey
Posted at 7:59 PM

A picture to share of Joey, Severe Infantile Marfan Mutation, taken in Jan when he got his new puppy. Joey will be 18 this Oct. and tho' he has had lots of stuff happen , 18 surgeries to date, vent dependent, wheel-chair bound, he is still a cool kid with a great attitude and zest for life. God has been there for all of us and has also blessed Joey with being a little younger mentally , it makes some of the stuff he has to deal with a little easier. He is not an 18 yrs old in maturity but earned his Varsity letter this yr in Academics. 6 trips to the OR throughout the school yr and he kept his grades up. What a kid !! He also played on a baseball team this yr. A dream come true for him . It was a Challenge team and all the kids were terrific.

Joey has been treated at Children's Hosp. in Philadelphia since he was 10 mos old and continues to be treated there. All surgeries have been done at CHOP, as well as all the breakthrough's in his unique care. They all still marvel when he pulls thru' yet another traumatic episode in the continuing "Saga of Joey's Life." Stay tuned, we plan for a full and long life ahead.

Big deal for him this year is he gets to vote !!!

Joyce in VA