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Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
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Saturday, July 24, 2004

Favorite Doctors Quotes

Contributed by Georgia


Georgia


(Actual quotes given by my doctors)

"It's not your fault your a clutz. Bodies just aren't supposed to move that way."

"It's probably the Marfans, when it doubt it's usually that."

"It's not like you have a normal body."

"I don't even want to know how you got in that position."

"Marfan's Syndrome is not spelled with an F. I should know. I've had my medical degree for 10 years now." (and I've had the disease for 28 years now)

"It's really impressive how freaky your joints are." ...(geee thanks)

"You don't have Marfans. You're not thin enough."

"It's just a little scar and you have so many already."

"So what makes you think you have Marfans?" (oh I just like the sound of it)


And as a special bonus a quote given TO my doctor from my dear husband

If you think that joint bends far you should look at her jaw I keep waiting for her to unhinge it like a snake


And said by the nurse when the doctor left the room in the ER

"You do know they don't have any idea what to do with you. Marfan's baffles them." (trust me it baffles us too.)

"Have you thought about a bigger hospital?"



My favourite is "Uuaaagh". A doctor said that to me when I bent my finger back 90 degrees to show him the flexibility, and the knuckle popped in the process.

By Anonymous, at 12:39 PM  


Better yet,
"What the heck is *that*??"
(I got this from a nurse at *Hopkins* looking at my back!)

By Anonymous, at 11:17 AM  


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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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