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Blogathon 2003 posts

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Blog created & updated by Jeanette Navia

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Blogs/Journals from the Marfan Community

Long Tall Folks' Journal

Maybe... (A love story by Thomas Schrantz)

Linka's Aorta Runs Amok

Barging Down D Nile

Thick n Thin

Jeanette's Skittering About the Web

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Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Archives

Blogathon 2003 posts

February 2003
March 2003
April 2003
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June 2003
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August 2003
September 2003
October 2003
November 2003
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April 2004
May 2004
June 2004