Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta

Tuesday, June 08, 2004

AHA publishes statement on exercise and those with congenital heart defects

The Right Workout for Those With Congenital Heart Defects: "Children, teens and young adults with genetic heart disease can exercise recreationally but need to get advice from their doctors about the kinds of physical activity that are safe, a new American Heart Association scientific statement recommends.

The statement, published in the June 7 issue of Circulation, is meant to help doctors counsel patients who have an increased risk for sudden death while they're doing physical activity.
This includes people with a number of kinds of genetic heart disease such as: hypertrophic cardiomyopathy; arrhythmogenic right ventricular cardiomyopathy; Marfan syndrome; and ion channel diseases, including long QT syndrome, Brugada syndrome and catecholaminergic polymorphic ventricular tachycardia."




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