Raw Faith running on faith - and fumes
Posted at 10:55 PM
Raw Faith running on faith - and fumes
... "McKay's daughter, Liz, uses a wheelchair to combat the effects of Marfan's syndrome, which weakens the body's connective tissue. Spurred by this, Brugh said, McKay and his family sold their possessions in Addison to build the Raw Faith."
Thanks, Nancy!

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Meet a little bundle of joy
Posted at 7:19 AM
ic Teesside - Meet a little bundle of joy But his wife Amanda (pictured) brought a bouncing 7lb 6oz baby boy into the world at 10.13am on Monday, just weeks after Paul's death.

Today the 28-year-old spoke of her delight at the birth of the boy her husband longed for.



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Big Hearts, Deep Pockets in Des Moines, Iowa
Posted at 7:08 AM
DesMoinesRegister.com | People/Places: "'Big Hearts, Deep Pockets,' a comedy show benefit, will be hosted by the Heart of Iowa Chapter of the National Marfan Foundation on Oct. 8 at Spaghetti Works, 310 Court Ave." in Des Moines.

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Sports: Autopsy on FSU woman supports initial findings
Posted at 7:31 AM
Sports: Autopsy on FSU woman supports initial findings Dr. Alan Braverman, a cardiologist and professor at Washington University's School of Medicine who's director of its Marfan syndrome clinic, said the DNA analysis also should prompt Pierce's immediate family to be genetically tested.



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Tallahassee Democrat | 09/16/2004 | FSU's Pierce died of Marfan
Posted at 7:16 AM
Tallahassee Democrat | 09/16/2004 | FSU's Pierce died of Marfan The aneurysm that killed Florida State women's basketball player Ronalda Pierce in June was brought on by Marfan syndrome as originally suspected.

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Fayette (Pa.) man awaits surgery for unexpected ailment
Posted at 8:12 AM
The Fayette man awaits surgery for unexpected ailment : "What Watson had laid on him was the diagnosis that doctors had found an aneurysm the size of an orange on his aortic valve."

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National Marfan Foundation is Lead Advocate for Education on Emergency Diagnosis and Treatment of Aortic Dissection
Posted at 4:51 PM
National Marfan Foundation is Lead Advocate for Education on Emergency Diagnosis and Treatment of Aortic Dissection

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Yahoo! News - Ritter Family Files Wrongful Death Suit
Posted at 7:32 AM
Yahoo! News - Ritter Family Files Wrongful Death Suit: "The suit said Ritter died in September 2003 of a tear in his aorta. But when he went to the emergency room complaining of chest pain, nausea and vomiting, he was misdiagnosed as having a heart attack, the suit alleges."

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MSNBC - Fashion: Starting to Walk Tall
Posted at 11:01 PM
MSNBC - Fashion: Starting to Walk Tall: "Discouraged by the lack of fashionable offerings, Caputo and Carreras?an actress and model?last year launched Tall Couture, an online boutique stocked with clothes that not only fit, but that they would feel proud to wear."
Tall Couture Don't get too excited. The prices are couture, too!
Thanks, Nancy!

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Bruce England on Jeopardy!
Posted at 9:43 PM
Okay, this is not about the Marfan syndrome. However, it is about the husband of Ellen England, who is very active in the Marfan syndrome community. I would be posting this reminder on Marfan-List, but the List is down right now and for the foreseeable future. (It should be up this weekend, but it's hard to tell. When Isabel came through here in Virginia last year, some places were without power for two weeks). In any case, Monday, September 13, Bruce England will be on Jeopardy, so all of you who know him from NMF conferences and Northern California Chapter cookouts, be sure to watch!

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Marfan-List is down
Posted at 2:11 PM
Nick (who has the servers where Marfan-List is held) lost power again, and says the power may be out this time for several days. This is what would normally be a simple power outage, fixed in a couple hours, but all the power workers in Florida have a prioritized list of what goes up when. Nick's neighborhood, unfortunately, is quite low on the list. He'll write to the list when it comes back up. (The Marfan-List web pages, where I have a blog for Marfan-List problems, are also down, and I'm going to be moving that blog to a this domain once it comes back up so I can inform people when the list is down due to a long power outage. Should have thought of that a long time ago, duh!)

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Court dismisses man's plea for caning review - SEPT 7, 2004
Posted at 6:48 PM
Court dismisses man's plea for caning review - SEPT 7, 2004: "At last month's hearing, Tan's counsel had argued that he should be spared the cane as there was still an inherent risk of death or serious injury if he was caned.
But in his judgment yesterday, Justice Choo Han Teck said that under the Criminal Procedure Code, no strokes would be given unless a doctor were present and certified the offender fit to undergo caning."

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Tall Paul's Tall Mall
Posted at 7:42 PM
Alameda Times-Star Online - Bay Area Living: "But the store, Tall Paul's Tall Mall, founded in 1999 by Hartmann, is really designed with the tall in mind. Although business was rocky at first -- forming partnerships with manufacturers that might have to make five products in an order rather than 500 was difficult -- Hartmann is now in the black. That's gratifying to the 50-year-old architect and teacher at Vermont Technical College, who started the business in his spare time. "
Way to go, Paul!

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