Marfan Blog Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~
Curvature of the spine Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness Weakening of the connective tissue, most dangerously of the aorta
Blogging things of interest to those
of us with the Marfan syndrome, by Jeanette Navia
Posted
9:22 PM There will not be an official Blogathon this year. However, I am looking into an alternative, similar Web event, Project Blog. I will know more about it next month. If you weren't on Marfan-List last year, and do not know what I'm talking about, please visit the July 2003 posts in the archives (see side menu). The posts take a while to load, but they're worth it. Many people in the Marfan community contributed. I hope many of you (and more new people!) will consider contributing again this year (and next!) Comments []
Sunday, April 18, 2004
Posted
9:35 AM Sports : Can people with scoliosis exercise?: "Exercise does not make scoliosis worse. In fact, it is very important for all people, including those with scoliosis, to exercise and remain physically fit. Girls have a higher risk than boys of developing osteoporosis (a disorder that results in weak bones that can break easily) later in life. The risk of osteoporosis is reduced in women who exercise regularly all their lives; and weight-bearing exercise, such as walking, running, soccer, and gymnastics, increases bone density and helps prevent osteoporosis. For both boys and girls, exercising and participating in sports also improves their general sense of well being." Comments []
Wednesday, April 14, 2004
Posted
7:20 AM The Scientist :: Biohistory guidelines urged: "The latest source of excitement is the bloodstained cloak worn by Mary Todd Lincoln on the night of her husband's assassination. 'Various groups want access to it, some for commercial purposes, like to sell jewelry with Abe Lincoln's DNA in it or to make a television show, and others to look at whether he had the gene predisposing to Marfan's syndrome,' Andrews said." Comments []
Posted
6:35 PM Mercury News | 04/09/2004 | Rules sought for genetic sleuths: "The group, which includes scientists, historians and lawyers specializing in bioethics, formed three years ago at the request of the Chicago Historical Society, which owns artifacts related to the assassination of President Lincoln: the bed he died in, the blood-stained sheets that purportedly were on that bed and the cloak his wife wore that night, which also appears spattered with blood. A number of people have proposed analyzing the bloodstains. Some want to see if Lincoln had a genetic condition known as Marfan syndrome. Others wonder if they are somehow related to the president. Then there's the company that wants to incorporate Lincoln's DNA into a line of pricey jewelry." Comments []
Posted
8:42 PM WSJ.com - Journal Is Awarded Two Pulitzer Prizes: "Journal reporters Kevin Helliker and Thomas M. Burton won the explanatory prize for their articles about aortic aneurysms, a little-known vascular condition responsible for thousands of deaths in the U.S. every year." Comments []
The explanatory reporting award went to Kevin Helliker and Thomas M. Burton of The Wall Street Journal for their "groundbreaking" examination of aneurysms, an often overlooked medical condition that kills thousands of Americans each year.
