Marfan Blog Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~
Curvature of the spine Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness Weakening of the connective tissue, most dangerously of the aorta
Blogging things of interest to those
of us with the Marfan syndrome, by Jeanette Navia
Posted
9:09 PM A primer on aortic aneurysms: "Aneurysms may also be due to an inherited disease such as the Marfan syndrome. Aneurysms are exacerbated by behaviors such as smoking and high blood pressure."
Post or read Comments []
Friday, March 19, 2004
Posted
12:23 AM William Walls: Remembering One UVM Student: "It is with great sadness that we inform the University community that William John Walls V, a second year student, passed away last week on Thursday, January 29 as a result of heart failure. He had been courageously battling heart problems related to Marfan's Syndrome for quite some time.
Marfan's Syndrome is a rare hereditary connective-tissue disorder of the connective tissue (which adds strength to the bodies structures) that affects the skeletal system, cardiovascular system, eyes, and skin. Marfan's Syndrome is inherited as an autosomal a chromosome, but can indicate a mutation) dominant trait. "
Post or read Comments []
Posted
6:25 PM KRT Wire | 03/16/2004 | Boston's The Lot Six prep for national tour, keep sound fresh: "For a while, Vicini wondered whether he'd be able to enjoy the budding success. An inherited heart condition called Marfan Syndrome sent Vicini to the operating table. The singer emerged with a metal valve in his heart, along with a graphic photo snapped in the immediate aftermath of the surgery that graces the picture-book CD insert for 'Major Fables.' 'My aorta was expanding and it affects your ligaments and muscle tissue, so I'm flexible and tall because of it,' he says of his condition. 'At any rate, I'm more healthy than I was before. I'm only 26, so I feel like me and our band have our whole future ahead of us.'"
Post or read Comments []
Wednesday, March 10, 2004
Posted
6:00 PM MLive.com - NewsFlash: "By the third trimester, a woman's blood volume increases by as much as 50 percent, testing the elasticity of blood vessels. Women with a family history of aneurysms, as well as those with a syndrome called Marfan's, are at higher risk for the problem. " You'll need to enter your zip, age and gender to view the article.
Post or read Comments []
