Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
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Saturday, July 26, 2003



Introduction
by Angela Hébert

The dead circle my hair, flowers behind my head
smudges of ochre, white. The marigold at my
temple is a breath caught in glass, a window
of fingers in sightless wind. My father faded,
yet palpable in bloom. A hand curled, another hidden
in my coat. I turn to the flowers
breathe in and lose them

I always wanted to be drawn
thought someone else would conclude me.
Even science cannot explain why
my father and I were tall and thin
in a family of short, stocky frenchmen.
My father a tree among the smiling lumberjacks.
Brother André of Quebec sent a blessed
oil for his eyes. Every night his mother
anointed him, but still
small objects eluded his searching hands.

©Angela Hebert

Used with permission. From The Marfan Writers Anthology, which can be purchased from the NationalMarfanFoundation.




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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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