Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Marfan Blog
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Saturday, July 26, 2003



From Bob

Unlike most of us Marfs, I managed to complete a 21 year career in the millitary before finding out I had Marfan Syndrome. The first 4 years I was in we had annual testing on the five basic exercises. Then in 1970 they had a better idea called aerobics testing. We were to do any type exercise program we wished during the year but would be weighed and have to run a mile and a half within a time frame set by age. I like many of us Marfs could never run without falling on my face. Every year I was 20 pounds under my minimum weight ( but this was ignored as they were looking for the fat boys) When the time came to run the six laps on a quarter mile track I decided that I would just walk it. Taking my giant strides as fast as I could without falling over my own feet. On the fifth lap I was passing people who had been running the whole time and finished ahead of my allotted time, unlike many whom I had passed. Long legs do come in handy some times.




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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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