Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Marfan Blog
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Sunday, July 27, 2003



I did it! I made it through! Thanks to all the sponsors and all the people who sent me stuff to blog! Thanks to the friends who dropped comments and e-mails while I was sitting here alone.

I am hoping that it may have done some good. Besides raising money for the NMF, I am hoping this one-day effort will have helped raise awareness of the Marfan syndrome. I hope some people stopping by the blog during these past 24 hours, or who will stop by in the future (since the Blog will be up for years to come -- these messages will be archived, but still accessible) may have noticed a similarity in symptoms in themselves or in people they know. Since doctors often fail to recognize that there is anything seriously wrong, and diagnoses aren't easily made, I just hope people start to understand the severity of the Marfan syndrome.

I did this in memory Jane Harris, John Morrell III, Chris Paulsen, John Malara, Jocelyn Wilson, Anna Doherty, Glenda Knightstep, Scott Kiefer, Judy Hayes-Kuchyt, Saundra Hesse, Sara Cayo, Melody, Allison Dunvegan Reed, Roberta and Susan, and I know I'm missing a few because my brain's not working very well at this hour (but e-mail me if you have someone you want me to add. Include a .jpg picture, too, if you have one). And I did this in the hopes the children like Zoie will be able to live a long, healthy, pain-free full life.


Zoie, age 2

Thanks, everyone! Time to sleep!!



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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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