Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Marfan Blog
(news stories, events, newly discovered links)

Saturday, July 26, 2003



Click link for a story (including picture), published yesterday, in the Zanesville, Ohio TimesRecorder. Little girl granted wish for Disney trip. "Destiny said she's looking forward to flying in an airplane and later seeing her favorite Disney characters.

'I want to be able to look outside the window and see clouds,' she said. 'I'm going to put Aunt Cindy in my suitcase.'
Destiny's Make-A-Wish was submitted by her doctor. She has Marfan's Syndrome, an abnormality involving connective tissue.

People with the syndrome are more likely to develop enlargement of the aorta, the main blood vessel leading from the heart to the rest of the body, according to Johns Hopkins Medical Institution Web site at www.medhelp.org."




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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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