Marfan Blog

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta

Monday, September 29, 2003


Sunday, September 28, 2003


Jeff Goldman, who has given so much to the NationalMarfanFoundation from his huge reservoir of creative talents and his huge heart, passed away yesterday as a result of an aortic dissection.


Jeff Goldman


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Thursday, September 25, 2003


Bangor Symphony Orchestra’sr Bodes Well: "After [Paganini's] death in Nice, his body went untended for a long time because the local populace was convinced he was accursed. On the contrary, noted Cerovsek, Paganini’ s unusual technical prowess may have been partly due to his suffering from Marfan’s syndrome, one manifestation of which is double-jointedness, the ability to contort one’s hands into extreme positions. "
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Sunday, September 21, 2003


Hell and blessings - marionstar.com. Not Marfan (perhaps) but a related disorder.
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Monday, September 15, 2003


The Salt Lake Tribune -- Condition that killed actor Ritter is rare and often of unknown cause (Ritter probably didn't have Marfan, but the article is interesting, and mentions Marfan.
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Saturday, September 13, 2003


Ritter's death: Kansas City Star. Aortic tear rare but often fatal disorder. "The danger, he says, is the flaw cannot be detected with routine screening -- not with an exam or chest X-ray."
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Ritter's death: Boulder Daily Camera. Disease that killed Ritter rare, deadly This is NOT true. X-Rays cannot usually show the aorta getting larger. "People with these conditions can be monitored for the problem. Regular X-rays, for example, can indicate that the aorta is getting larger, a sign of the problem. In such cases, surgical repairs can be attempted. "
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Friday, September 12, 2003


I do not think he had Marfan (but I don't know), but John Ritter Dies from a dissection of the aorta.
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Thursday, September 04, 2003


Google News just got better withGoogle News Alerts! I've already filled in "Marfan" here, so if you want Google News to send you news alerts about Marfan syndrome, just add your e-mail address, and Google News Alerts will send you an e-mail to verify that you do want to be alerted to news stories that contain the word "Marfan." (Keep in mind that Marfan is also a last name, so some stories, of course, will not be related to the syndrome.) These news alerts from Google News are brand new today, so I don't know how well they work yet.
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Wednesday, September 03, 2003


There is a new online forum for Australians, based in New South Wales! Check out the Marfan Support and Information in NSW Australia where you'll find information and an online discussion forum.
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Monday, September 01, 2003


This could be a helpful resource for parents (although at the moment, there's not much about Marfan syndrome). Caring Parents
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Here's a great site for people who are tall (or short!) The Height Site. Short or Tall, there's something for all. Lots of good information including where to find clothes and shoes that (might) fit, interesting reading from visitors, tips from visitors on buying cars, discussion about height discrimination. Check it out! (I am not sure the bulletin boards on the site are working right at the moment, but I'll be e-mailing the guy behind the site to see what's up).
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