Marfan Blog : 08/01/2003

Blogging things of interest to those of us with the Marfan syndrome, by Jeanette Navia

Pledges to the NMF from the Marfan Blog during Blogathon 2003 totaled $1039 from 35 sponsors!

Blogathon theme: Long, bony fingers, tapping away throughout the day and long, long into the night. The Marfan Blog will stretch as the day progresses, filling with poetry, pictures and prose, laughter and fun, sadness, anger and loss, joy, boredom, confusion, fatigue and love, as life for those of us with the Marfan syndrome is portrayed. Among Marfan posts will be tall jokes (because usually we're tall), tall trivia, and occasional unrelated fun links (because our lives aren't only about Marfan).

Suggest a link

Visit MarfanLife
Join Marfan-List

Blogs/Journals from the Marfan Community

Long Tall Folks' Journal

Linka's Aorta Runs Amok

Barging Down D Nile

Jeanette's Skittering About the Web

Books of Interest

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

Archives

02/01/2003 - 02/28/2003 03/01/2003 - 03/31/2003 04/01/2003 - 04/30/2003 05/01/2003 - 05/31/2003 06/01/2003 - 06/30/2003 07/01/2003 - 07/31/2003 08/01/2003 - 08/31/2003