Marfan Blog
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Blog for things interesting to those of us with the Marfan syndrome, by Jeanette Navia

Sponsor me in the 2003 Blogathon!
July 26th

Suggest a link

Visit MarfanLife
Join Marfan-List

Blogs/Journals from the Marfan Community

Long Tall Folks' Journal

Linka's Aorta Runs Amok

Barging Down D Nile

Jeanette's Skittering About the Web
Books of Interest

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Archives

02/01/2003 - 02/28/2003 03/01/2003 - 03/31/2003 04/01/2003 - 04/30/2003 05/01/2003 - 05/31/2003 06/01/2003 - 06/30/2003 07/01/2003 - 07/31/2003

Thursday, June 26, 2003

Posted 7:38 AM
ScienceDaily News Release: Newly Mapped Gene For Ruptured Heart May Lead To Life-saving Treatment (There's that "near-normal life" comment again! Sigh.)
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Sunday, June 22, 2003

Posted 11:11 AM
Aneurysm & AVM Support. This website may be helpful for people with aneurysms.
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Wednesday, June 11, 2003

Posted 11:11 PM
Start your Christmas shopping early! Order several HeARTworks 2004 Calendars from the NationalMarfanFoundation today! Great hearts!
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Tuesday, June 10, 2003

Posted 6:52 AM
A new LiveJournal has been started for those of us with Marfan! To read the journal, click here: Long Tall Folks' Journal. For information about it and how to join, click here: Community Info. Although you have to be a LiveJournal member to post, anyone can add a comment to an existing post. And becoming a LiveJournal member is free! Thanks, Sally!
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Marfan Life Info