Marfan Blog Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~
Curvature of the spine Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness Weakening of the connective tissue, most dangerously of the aorta
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10:06 PM Were Einstein and Newton autistic? This article is not about Marfan per se, but about Asperger's syndrome. I have often heard that people with Marfan may have a slightly higher chance of having Asperger's syndrome. Asperger's syndrome has been classified as some sort of autism. What I find unfortunate is that this "syndrome" doesn't seem (to me anyway) to be anything that should be labeled as a disorder or a syndrome. The characteristics -- impatience with small talk, obsession with interesting topics -- seem to me to simply be characteristics, not symptoms of something bad. So people are different -- so what.
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Sunday, April 27, 2003
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8:53 PM KittySafe Ntwrk has a forum for people wanting to chat about Marfan. Check them out! (Scroll down until you see #Marfans.)
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THURSDAY - Hearts autographed by Michael Jordan, Celine Dion, Jennifer Lopez, Tiger Woods, Billy Joel, Mike Piazza and others will be auctioned at the Liz Claiborne Showroom, 14th floor of 1441 Broadway (41st Street), to raise money for the National Marfan Foundation. The organization offers public education, support groups and money for research on this potentially deadly genetic disorder that can affect the heart, skeleton, lungs, eyes and blood vessels. The evening begins at 6 with drinks, hors d'oeuvres and a performance by members of the cast of "Chicago" at 6:30, with the auction at 7:30. Tickets, $150, from (800) 862-7326, ext. 20.
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