Marfan Blog Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~
Curvature of the spine Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness Weakening of the connective tissue, most dangerously of the aorta
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11:01 PM A friend with Marfan whom I met through the Internet, Jamie Friend, is written up in an article called Taking Control in the Kankakee Daily Journal. There is also a bit about Marfan resources at Marfan Resources.
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12:43 AM I found out today that Flo Hyman acted in an adventure movie before she died in 1986. Her character was "Spike," in The Order of the Black Eagle. You can buy it, if you want, at Amazon.com or Half.com. '''Because of her outstanding athletic ability she was able to quickly become proficient at knife throwing and karate,'' said one of the executive producers. ...Matthew Mallinson, who edited the movie, adds, ''She's not just standing there looking pretty. She's in one very dynamic sequence where she takes on six or seven people.''' Sports Illustrated, May 5, 1986 p. 12.
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6:45 PM I'm starting a blog for all things Marfan. Not sure yet what'll go here or how often I'll update it, but we'll see! Meanwhile, visit my Home page, or consider joining Marfan-List if you have or have an interest in the Marfan syndrome.
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A friend with Marfan whom I met through the Internet, Jamie Friend, is written up in an article called