Marfan LifeComments from Web VisitorsClick here to add an entry to the guestbook.
really cool website-I noticed the name Henderson as having marfan's and I am definitely of Henderson stock as well as Cole/Hill background - my sis has marfans (i think i do too) mvp,hbp,rotoscoliosis,myopia,flat feet, possible spina bifida defect-please feel free to write me thanx! Burke Burke Cole Lowell <> tampa, fl USA - Sunday, October 14, 2001 at 14:26:57 (CDT) Hi! Well first of all I want to start off by telling you how much I admire you. You are so open minded adn so willing to help people know more about this syndrome. I'm 17 yrs. old and I was very interested in the Marfan Syndrome the minute my teacher assigned me to research this. I just want to know how you dealed with this when you were a child? Did you get made fun of alot or did you fit right in? I saw your pictures and you look average to me. Did any of your teachers make you feel like you were different from all the others and treat you differently? I want to thank you for helping me learn more about Marfan Syndrome and I hope that you keep helping people learn more about this. I think it's important that more people learn about Marfan Syndrome. I hope i haven't bothered you in any way and hope to hear from you soon. DELIA MIRANDA <> ODESSA , TX USA - Saturday, September 22, 2001 at 12:35:26 (CDT) |