  The Marfan syndrome is a heritable disorder of the connective tissue that affects many organ systems, including the skeleton, lungs, eyes, blood vessels, and, most seriously, the heart and aorta. The condition affects both men and women of any race or ethnic group. It is estimated that at least 200,000 people in the United States have the Marfan syndrome or a related connective tissue disorder.
While not all people with Marfan exhibit all symptoms, common characteristics include tall stature, disproportionately long arms, legs, fingers and toes, indented or protruding chest bone, scoliosis, flat feet or high arches, and nearsightedness. Please note: The place where the most up-to-date medical information currently approved by doctors studying the Marfan syndrome is the NationalMarfanFoundation website
The Marfan Community
Research Opportunities You Can Help With
Marfan Syndrome Information
Miscellaneous Pages
The best place to get medical information about the Marfan syndrome is not from me, as I am only a patient, but from the NationalMarfanFoundation at or 1-800-8MARFAN.
Also, I work full-time at an unrelated job -- replies from me may take a long while! You may want to consider writing to Marfan contacts/penpals. See listing at Marfan Contacts. And I have no information to send -- information about the Marfan syndrome can be found by following links from this website or at the NationalMarfanFoundation website. Nevertheless, if you want to write to me and don't mind waiting for a reply, my address is jnavia@marfanlife.org  
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